I have been putting this off and truley dont know if I’ll even remembeer all the events of the last 18 months but I’ll try.
On April 16th, 2008, I was in the presurgical waiting room awaiting an ablation for chronic and profuse bleeding. At this time the Dr stated that he would also be putting essure coils in since I didnt want to chance pregnancy with an ablation. And I was wheeled to surgery. The next thing I remember is waking screaming and on fire after alot of dilluid…i calmed. I never thought about essure again until 8 months ago. However, three weeks after the ablation I was hospitalized with polynephritis. At this time I was also informed I may have bladder /kidney cancer…wound up being scar tissue. Three years went by…i had constant uti’s and bladder infections and random shooting pains in the female region. I never had the HSG as I was allergic to contrast medium and I never had a period again so the lab kept saying you have to come 5 days after period etc. and time went by. saw my gyn several times and his reply wa always all looked fine and there was no need to check anything as long as i wasnt having an issue. About three years ago I was diagnosed with high blood pressure and was put on medication. As i said I never thought about essure. I was a happy, social, working single mother.
About two years ago, I started having allergies…to dust ..molds..then foods…then medications…this brings us to May of 2011. I started to be out of breath, have chest pains, get dizzy, have floaters, get shooting pains down my legs and be unable to walk. It was getting to the point that I couldnt walk from train to work….was afraid to go out alone..had severe anxiety…saw my MD several times and she said anxiety and prescribed an antianxiety medication. I started to feel fogged over and out of it and figured it had to be the blood pressure pills since I wasnt taking the other medication. We decided I was having some type of reaction and switched bp meds….every one we tried I had a severe reaction to. I was seeing the MD 2x a week..an allergist,immunologist and just kept getting sicker…now my tryglecerides were in the 800s, my skin was on fire, i kept swelling up. AT this point I took a leave from work to ‘get my health issues’ in order.
I also kept going to the ER and calling ambulances because I truley felt as if I was having a heart attack…some days I couldnt walk two steps. I was sent to every specialist in creation and given 100’s of diagnosis. I saw cardiac who said heart was fine…pulmonologist who said some COPD and asthma, GI who after numerous horrible tests diagnosed me with esophageal dysmotility,nutcracker spasms,and GERD. Immunologist who found I had markers for lupus hyshimotos, and fibromyalgia but not the disease, type 3 angioedema, chronic hives, undefined auto immune disorder,flu like syndrome, migranes, severe dry eye. In addition every medication they tried had yet another severe reaction. My GI Dr was great…but kept saying theres gotta be something else wrong…everyone was throwing their hands up and i was in a never ending circle of ERs and Drs, and only getting worse. It was to the point that I never left the house or couch. I had tried over 50 drugs with horrible results. I lost my job and insurance….had to wait 90 days to get state insurance. Luckily I got hooked up with an great Immunologist and MD because both kept saying theres something wrong your bodys just attacking itself.By now my kidney and bladder hurt all the time…constantly felt like i had a uti, had burning in my back and severe joint and spine painin addition to all else. The Immunologist one day said..did you ever have any implants or anything??? I said yeah …essure. He said go see your gyn make sure your ok in that area.When I got home I looked up essure online and was blown away by the thousands of women experiencing the same issues as me.
Off I went to the Gyn. He said absolutely not…essure doesnt do that etc etc. Sent me for MRI..nothing…..Cat scan nothing…mind you they wouldnt do dye tests despite the predisone benadryl prep. I saw his PA one day and shes said she never liked them ..didnt believe in implanting foreign substances in your body…and sent me for an xray. The results blew my mind..you could see th right side was coiled and crumpled up. The gyn said well its on the right side…by this time I was spotting here and there. He decided step one would be another ablation and hystercopy. When he attempted my uterus was sealed shut and he couldnt see anything. Now I was spotting more..in constant pain, add in all the other stuff and begged him to just get it out of me. He agreed mostly due to a giant cyst and fibroids.
On 8/1, I was wheeled to surgery expecting to wake up after a hysteroctomy. What I woke up to was the Gyns amazement at how my coil had perforated my tube, ureter, and was all in my bladder and bowel. He had removed the right tube and coil, uterus, and felt all else was fine..and could use the hormones. Well, I was happy…80% of my ‘diagnosed’ ills were gone. My bladder has yet to stop the pressure feeling but he said that can take 6 months. About the 6 week point I began bleeding heavier and heavier to near hemmorage. Many of the old skin burning, swelling, fogged over feeling has returned. The gyn has agreed to go in and finish the job late Oct. I do believe since I’m half way better…removing essure completely will remedy the situation. As for my other issues..the only that remain are GERD and random spasms…and I think they too may disappear with essure as they are nothing compared with what they were.
I thought alot about other illnesses and maybe essure is not the cause. But since the moment I woke up from surgery I have been different. I am having a few rough spots but nothing like I was and I know in my heart…essure…its placement…movement…poisonous fibers and nickle did this to me.